AlwaysQuilting

I'm wondering if my rheumatologist was correct when he told me (on several visits) that I have Sjogrens. I have joint aches, but do not need to use eye drops or suck on anything to keep my mouth moist. Although growing up my dentist told me my mouth was too dry. And my eye doctor would never let me wear contacts (back before the soft moist ones) because my eyes were too dry. He put a pair of the hard ones in and was amazed that I didn't have tears.

Since Xmas 2010 I've changed what I eat entirely for other health issues. No added salt, no sugar, no meat. And my aches have dimished alot although they haven't gone away entirely. He took me off the Plaquinil for adverse effects. Right now I'm not taking (or needing) anything. Makes me wonder if its Sjogrens at all.

nativetexan

for opening jars, find some of those round rubber discs. perhaps at Bed,Bath and Beyond stores. good luck.

Scissor Queen

I have this thing, It works. I don't have anything to do with PC.

Born2Sew

For all of you ladies who fight the battle of having any of these auto immune illnesses, know you are in my thoughts. This past month has been like a roller coaster ride for me, and the emotional turmoil has really sent me flaring. The cold weather doesn't help either.

DD went to the eye doctor a while back to get contacts. He almost refused to give her any becaue he told her that she has no mucous membranes on her eyes. She called to tell me about it, and I said, Oh dear, you have Sjorgrens! She called the doctor back and asked if he thought she had Sjorgrens since I do. He told her he had no idea that she had family members with it, and to go get herself checked immediately. Sure bet, since she has no insurance...

grannyp70

Hi Nadine, yes I have Lupus, most of my symtoms are kind of like yours, my memory is totally gone, can't remember anything anymore, every join in my body hurts all the time, but sometimes when it really flares up I can't do anything for a few days. I have no strenght in my hands either, and when it flares up they swell until they are double in size and the pain is unreal. I have had it for about 6 years and my biggest problem is that I am allergic to all the medicines for it so I can't take anything at all, I have tired several different kinds of meds and they put me in the hosptial for a week so there isn't anything out there yet that I can take, so I really have a hard time, but I am not going to let it get me down, I am still trying to quilt some when I can. But I have several other things wrong with me as well but I will continue to fight it for as long as I can and not give into it, so you take care and keep doing what you love to do when you can. Don't let it get you totally down. OK. HUGS

karen65ae

What wonderful inspirational people you are..

Candela59

I just got the Sjogren's diagnosis from my doctor today. I've had issues for almost 20 years after a bad case of Mono but the last 4 months have been murder.

I'm so tired I can barely function, dry eyes and mouth. The pain is worse at night. So sore from aches and joint pain all night long.

Doc also thinks I have Fibromyalgia and possibly Lupus just for good measure. Ain't life grand :shock:

I have also noticed brain fog the last few months. I find my self struggling to find words when I'm talking and just spacing out too.

I just got a script for the Plaquinel today but am debating whether I want to take it....I hate taking meds!

I just hope it is as bad as its going to get. I'm going to look into diet and see if that gives me some relief.

Good luck to all of you...thanks for letting me vent!

AlwaysQuilting

I hope you get some relief. I can't take the Plaquinil anymore because of the adverse reactions.
But since I quit eating meat and sugar (since Xmas) I'm feeling so much better. I posted a day or so ago that I still have symptoms but my joints have calmed down so much. I don't know if it's actually the foods I've eliminated or maybe I'm just in a remission sort of.
Good luck.

tuxedokitty

Don't have Lupus or Sjorgrens, but have pretty bad Osteoarthritis. Have had both hips replaced, then both hips needed revisions, had extensive massive reconstruction on right femur, and now have OA in my spine. I think these diseases bring us good days, bad days, depressing times and very happy times. I find that often I need to remind myself how lucky I am and just try to turn my thoughts to something pleasant like....QUILTING :), kitties, baking, my church, etc. Hugs to you!

grammy17

Thinking back, 20 years ago I complained of feeling like I was living in a fog all the time. I didn't see any doctor and just lived through it. Not bothered with that any more. So...there is hope that your symptoms will go away. About the same years, I tried wearing contacts. Couldn't work that out. I was spending a fortune in eye drops. I ham blessed that my symptoms are something I can live with I wish you all well. MB