yourstrulyquilts

My family is the same way. None, except DH understands what's going on. He's been with me every step of the way, bless his heart.
Hey another symptom I've had is sitting in my car at a stoplight, and the car next to me starts to go forward, and I have the feeling of going in reverse. I stomp the brake, then realize I'm not going anywhere, it's just that sensation again. A very strange feeling. I've also had mini seizures, lasting less than 10 seconds. I've only had three, but it's kinda scary. I just sorta freeze, and can't move. Once at work, my co-worker asked if I was OK. I haven't had one for a long time. I guess other things have replaced it.

blahel

so loss of sense of smell is a symptom as well? i have gradually over the last few years lost my sense of smell. i cant say i smell anything unpleasant either..I miss smells!! occasionally I will still get a very quick whiff of perfume or cooking but thats about it. This week i also had a very dripping nose for a couple of days and thought i was getting a cold but then it just went away.

sewbaby

Yes the dry issue is also a pain 2 of my meds are for my eyes, one is a steroid based drop and the other is for moristure and then there is the benedryl for the itching , vit D cause you can't go out into the sun and I LOVE IT OUTSIDE one of my fav's is hand quilting in my special hammock my hubby fixed for me under the biggest shade tree we could find

Charity Quilter

I am with you Blahel.........I also miss "smell". Especially the sweet smells of good cooked foods or essential oils.

watterstide

My smells are intact,thankfully..tastebuds too.
does anyone here take "relafen"750mg ? i was on Arudis(sp), and it quit working..so i have this..haven't filled the scrip yet..

Riversong

I have had it for years,to the point that I am classified as dis abled. The pain varies,but one constant is I feel sunburned all the time. Lots of muscle pain,and fatigue....I feel for those who share this awful stuff...

sbeddingfield

I had a terrible accident about 14 years ago and thought it started then but not bad and I had 3 teenage children and a husband. I just thought I was overweight and didn't take care of myself. Well, 3 and 1/2 years ago, I found out that my deacon, sunday school teaching husband of 27 years had gotten into online porn and then I found out that he was meeting people he met online. I told him we could get help and save the marriage but he wasn't interested so we got a divorce. That started 3 years of stress - my best friend died, my daughter got married then had a baby boy (good stress but still stress), then while pregnant with her second (a girl) she was diagnosed with an inoperable brain tumor and wound up having a premature baby and brain surgery (even though they couldn't get all the tumor), then my dad died unexpectedly, my mom just about lost it as they had almost made it 60 years, I had to move, change jobs, find out that my husband had lots of hidden debt, my job is very stressful, and it goes on and on.
In the midst of this, I was diagnosed with a muscular distrophy autoimmune disease called dermatomyositis. It is the wasting away of trunk and upper leg and arm muscles. I have a great rhuemotolotist and that is sort of in control but still in so muh pain. When he asked me to write out over the course of 2 weeks how the pain is, I did, and he showed me the symptoms for fibro - you would have thought I copied the list - ha. So now I also have that diagnosis. I have to work but my job as lead special ed. teacher for a large inner city high school is very stressful. Sewing and quilting help me deal but my biggest problem is handling stress.
I feel so bad for all of you fellow sufferers. Take care,
Scherrie

grammo013

I did take it but it didn't work for me.
Wishing you luck that it helps.

watterstide

Where are you at in michigan Linda? i am in taylor,southeast of detroit..

grammo013

I am in Mt Morri just north of Flint. Not far apart at all.