Go Back  Quiltingboard Forums >
  • General Chit-Chat (non-quilting talk)
  • How many members have fibromyalgia? >
  • How many members have fibromyalgia?

  • How many members have fibromyalgia?

    Thread Tools
     
    Old 02-27-2010, 10:22 AM
      #171  
    Super Member
     
    Join Date: Oct 2009
    Posts: 5,453
    Default

    nope,not far!
    watterstide is offline  
    Old 02-27-2010, 12:10 PM
      #172  
    Super Member
    Thread Starter
     
    Ditter43's Avatar
     
    Join Date: Jan 2007
    Location: Crystal River Florida
    Posts: 9,785
    Default

    Charity Quilter,
    DON'T give up hope!! I go through spells where I am pretty much free of the fibro type pain. Unfortunately with my back problems added in, pain of some kind every day is a given. I've had enough emotional upheaval in my life the past couple of years to expect a flare up. I am surprised it hadn't struck much sooner. I had a couple of small flareups while caring for my daughter, but the big kahuna has waited till now. I don't feel as bad as I did a few days ago, but I still feel only about 50%....I can handle it. :D

    Have fun today, it's a great stress reliever!

    Ditter
    Ditter43 is offline  
    Old 02-27-2010, 12:26 PM
      #173  
    Super Member
    Thread Starter
     
    Ditter43's Avatar
     
    Join Date: Jan 2007
    Location: Crystal River Florida
    Posts: 9,785
    Default

    Scherrie, They say when it rains it pours....that's certainly been true for you. Stress really does a lot of damage to us all, with or without fibro. Learning to let go of the stress is hard, learning to let the stress flow around you instead of through you, priceless!! (but doable sometimes)There are all kind of visuals that you can use to help yourself get into the right frame of mind . When I was still working and the stress was getting to me, I would close my eyes and picture my self standing with crap flying past me, but none of it touched me. As a nurse, that was an easy visualization!! :lol: Find one that works for you..You will be surprised how much it can help.

    Ditter
    Ditter43 is offline  
    Old 02-27-2010, 04:04 PM
      #174  
    dsj
    Senior Member
     
    Join Date: Nov 2009
    Location: mid tennessee
    Posts: 489
    Default

    You know, I never thought about my loss of smell being a symptom of Fibro but I can't smell any thing. I have had 3 sinus surgeries, along with rhinoplasty twice. My poor nose has been through so much, I just thought it was due to all the surgeries, I am sure that doesn't help. I don't miss the smells so much the only problem with it is that I don't have an appetite, there isn't a trigger for it. I have to remind myself to eat and really nothing tastes good and then the IBS issues that I have to deal with when I do eat. It is like an never ending battle with this stuff.
    dsj is offline  
    Old 02-27-2010, 04:31 PM
      #175  
    Senior Member
     
    yourstrulyquilts's Avatar
     
    Join Date: Nov 2009
    Location: Oregon
    Posts: 701
    Default

    Originally Posted by dsj
    You know, I never thought about my loss of smell being a symptom of Fibro but I can't smell any thing. I have had 3 sinus surgeries, along with rhinoplasty twice. My poor nose has been through so much, I just thought it was due to all the surgeries, I am sure that doesn't help. I don't miss the smells so much the only problem with it is that I don't have an appetite, there isn't a trigger for it. I have to remind myself to eat and really nothing tastes good and then the IBS issues that I have to deal with when I do eat. It is like an never ending battle with this stuff.
    I'm sorry for you, but I wish I couldn't smell for about a month!! I might shrink............Honestly, it has to be very hard. My heart goes out to you all.
    yourstrulyquilts is offline  
    Old 02-27-2010, 09:40 PM
      #176  
    Super Member
     
    BrendaB's Avatar
     
    Join Date: Jan 2010
    Location: Muscatine, Iowa by way of West Virginia, Washington State, and Montana
    Posts: 1,130
    Default

    Originally Posted by sasseyib
    Hi. I am new here and have been reading all of the responses to fibromyalgia. My hands and feet have been hurting so bad but the doctor says it is arthritis. I have been going to many different doctors over the last few years and have been on lyricia (which I am not now) and celebrex. I read about black cherry juice concentrate the other day and decided to give it a try. I am taking 1/4 cup twice a day and I can't believe how the pain has gone away. I am also taking extra magnesium for my restless legs. If they quit working I will let you know but the juice tastes good and I buy it at the natural food store or on line.
    Welcome, and thanks for the information. It is certainly worth a try.
    BrendaB is offline  
    Old 02-27-2010, 09:50 PM
      #177  
    Super Member
     
    BrendaB's Avatar
     
    Join Date: Jan 2010
    Location: Muscatine, Iowa by way of West Virginia, Washington State, and Montana
    Posts: 1,130
    Default

    Originally Posted by sbeddingfield
    I had a terrible accident about 14 years ago and thought it started then but not bad and I had 3 teenage children and a husband. I just thought I was overweight and didn't take care of myself. Well, 3 and 1/2 years ago, I found out that my deacon, sunday school teaching husband of 27 years had gotten into online porn and then I found out that he was meeting people he met online. I told him we could get help and save the marriage but he wasn't interested so we got a divorce. That started 3 years of stress - my best friend died, my daughter got married then had a baby boy (good stress but still stress), then while pregnant with her second (a girl) she was diagnosed with an inoperable brain tumor and wound up having a premature baby and brain surgery (even though they couldn't get all the tumor), then my dad died unexpectedly, my mom just about lost it as they had almost made it 60 years, I had to move, change jobs, find out that my husband had lots of hidden debt, my job is very stressful, and it goes on and on.
    In the midst of this, I was diagnosed with a muscular distrophy autoimmune disease called dermatomyositis. It is the wasting away of trunk and upper leg and arm muscles. I have a great rhuemotolotist and that is sort of in control but still in so muh pain. When he asked me to write out over the course of 2 weeks how the pain is, I did, and he showed me the symptoms for fibro - you would have thought I copied the list - ha. So now I also have that diagnosis. I have to work but my job as lead special ed. teacher for a large inner city high school is very stressful. Sewing and quilting help me deal but my biggest problem is handling stress.
    I feel so bad for all of you fellow sufferers. Take care,
    Scherrie
    Scherrie, what a crappy 3 years you have had. I'm so sorry. Things will get better. You are a very strong, capable woman. My prayers are with you. The Gaithers have a song that tells about how when life was awful, they expected God to take away the burdens, but instead, God went through the trenches with them and they became better for the experiences. (My interpretation). God sees every tear and feels every pain. You are not alone. Hugs and Prayers.
    BrendaB is offline  
    Old 02-27-2010, 09:53 PM
      #178  
    Super Member
     
    BrendaB's Avatar
     
    Join Date: Jan 2010
    Location: Muscatine, Iowa by way of West Virginia, Washington State, and Montana
    Posts: 1,130
    Default

    Originally Posted by Ditter43
    Scherrie, They say when it rains it pours....that's certainly been true for you. Stress really does a lot of damage to us all, with or without fibro. Learning to let go of the stress is hard, learning to let the stress flow around you instead of through you, priceless!! (but doable sometimes)There are all kind of visuals that you can use to help yourself get into the right frame of mind . When I was still working and the stress was getting to me, I would close my eyes and picture my self standing with crap flying past me, but none of it touched me. As a nurse, that was an easy visualization!! :lol: Find one that works for you..You will be surprised how much it can help.

    Ditter
    What good advice. :-)
    BrendaB is offline  
    Old 02-28-2010, 04:27 PM
      #179  
    Junior Member
     
    sbeddingfield's Avatar
     
    Join Date: Nov 2009
    Location: Fort Worth, TX
    Posts: 294
    Default

    Great advise - thanks so very much - I plan to keep watch of this thread. Just knowing that someone else is out there helps (although I wish no one had this)
    Blessings,
    Scherrie
    sbeddingfield is offline  
    Old 02-28-2010, 05:27 PM
      #180  
    Senior Member
     
    Cheryl's Avatar
     
    Join Date: Dec 2009
    Location: Southern Ca.
    Posts: 734
    Default

    I don't know if I have that but I do know I have arthritus and my knees and legs and everywhere else hurts.How can you tell if you have that fibromyalgia?what kind of tests do they do on you?
    Cheryl is offline  
    Related Topics
    Thread
    Thread Starter
    Forum
    Replies
    Last Post
    kclausing
    General Chit-Chat (non-quilting talk)
    102
    01-16-2011 09:30 AM
    minnow895
    General Chit-Chat (non-quilting talk)
    28
    08-31-2010 04:28 PM
    marsye
    General Chit-Chat (non-quilting talk)
    45
    11-17-2009 06:32 PM
    coldtoesinmi
    Main
    26
    03-30-2009 04:08 AM

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is On
    HTML code is On
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off



    FREE Quilting Newsletter