lupus
#1
Senior Member
Thread Starter
Join Date: Apr 2007
Location: killeen TX
Posts: 468
I know we have a lot of nurses here on the board.Can anybody tell me about lupus and help me to live with it.After 1 year having tests and tests done and seen almost every doctor in town(seems like it) i got diagnosed with lupus.Any advice??
#3
Here is a website that my aunt used, very informative :D:D:D
http://www.mayoclinic.com/health/lupus/DS00115
http://www.mayoclinic.com/health/lupus/DS00115
#6
Another thought....my niece was diagnosed (misdiagnosed) with Lupus after building a home... eventually they found out it was the chemicals in her carpeting that were causing the reactions that looked/acted like Lupus. I guess you've had as many tests as you can, but please consider this possibility as well, and try to limit your inter-action with chemically treated products.
#7
Super Member
Join Date: Aug 2010
Location: Houston, TX
Posts: 3,955
My DD has lupus. She has to control her weight, limit stress, rountine doctor and dermatologist and lab work and lots of steriods. She did do an FDA study for Lupus using Vitamin A that was very helpful. Lupus is an autoimmune disease. There are several websites with chat rooms for sharing what you are going thru - she found a common ground here that helps on those days that you are angry, scared or just want to vent. She recently lost 50# which significantly helped her flare ups. She also has "bump's" along her cheekbones (like the singer Seal) but hers come and go with stress, so she sees a dermatologist. Take one day at a time, exercise, eat well and rest when you feel overdone. She is a great believer of naps.
**there are always studies going on, maybe one in your local area to participate in
**there are always studies going on, maybe one in your local area to participate in
#8
I was diagnosed four years ago with Lupus, I also have fibromylgia. Take your medicine avoid the sun, get as much rest as you can. Talk to your doctor if the medicine is not working. There are a lot of us on here with lupus and so much support. Above all take it one day at a time.
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